Cavit's experts reported to Mike and his family today on his progress in the last 8 weeks, and on what lies ahead. The bottom line is that they expect him to be able to live again in due course as an independent adult and to hold down paid employment. I think the literature on brain injuries describes such outcomes as a 'good recovery'. This is amazing in the light of the severity of his injury -- eg 54 days in a state of post-trauma amnesia when 6 hours is regarded as serious. The cognitive testing shows up a few things that need working on, but it would be a miracle if it were otherwise and none of them can be expected to be intractable. Perhaps the best news of all is that they report that he has a high level of awareness of things that need to be worked on. Apparently it is common for people with these injuries to fail to perceive areas where things are not yet what they were. Obviously it is much harder to put something right when you do not know that it is wrong.
The immediate target is to see him walking solo in the next 6 weeks. He gets into the swimming pool for the first time this Friday, now that the site of his P.E.G is sufficiently healed. That should increase his range of therapeutic activities. There is no doubt that Mike is keen to see what he is capable of in the water, given his difficulties with walking.
In the light of all this, fatigue management appears to be the biggest issue Mike faces for the foreseeable future. The physio reports that whereas a few weeks ago he could handle a few minutes physio max, now he can handle 20 minutes. Then he must rest.
One conclusion to come out of this is the desirability of scheduling visits to Mike so that he has rest periods between visits. To achieve this he almost needs an appointment book so that he knows the time at which you will be visiting so that he can rest up before you arrive. So please contact his social secretary (Lee) and book in a time for visiting, and try to arrive on that time if you can so that Mike can plan his energy levels accordingly. This is not the normal casual Kiwi way, we know, but this fatigue problem is not normal either.
Finally, Mike was naturally chuffed by all the responses to his blog.
The positive energy you are all giving him undoubtedly boosts his impressively positive spirit.
Yours appreciatively
Bryce
Wednesday, May 25, 2005
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11 comments:
Fantastic report Wilkinson team. There is indeed a very bright light at the end of the tunnel. Mike you're a medical legend!
Love Cathy and Lindsay
Way to go Mike!
You are an amazing guy! Congrats on all of your achievements to date! Its just fantastic!
As for booking times to see you, we would like to make some!
We will email your secretary with the dates!!
Cant wait to see you soon!
Keep up the amazing work!
Kent and Amanda ;)
Mike,'
What can I say other than having a fantastic time in Cambodia- and still addicted to checking your website and progress.
Keep it up. You're a star.
Lou
This is fantastic. Congrats and celebs. Look forward to visiting again soon.
Janne
Just wonderful to read this latest report. Mike never was in any way ordinary, and his recovery seems no different. Really stoked for you all.
Best regards,
David & Caro Steele
Mike so wonderful to read your letter, and great report yesterday!
so much love,
Betsy
Absolutely Brilliant!!
You must all be so pleased. Mike, you're able to get in the water at last!
This is a wonderful high for you all. After such major trauma to end with such a positive outlook is really great.
Congratulations to everyone in involved in all the hard work.
K & J
As i have said right from the start you are an inspiration to us all. I check your progress daily and it is always a wonderful reminder to me - never to take anything for granted. And to NEVER EVER GIVE UP!!!!!. I am so pleased for you and your family. Cant wait to hear how you find hoping into the water. Just take your time and you will get there!!. Mike your a true champion
Kind Regards
Vicki (friend of lous, fellow ironman friend :))
As i have said right from the start you are an inspiration to as all. I check your progress daily and it is always a wonderful reminder to me - never to take anything for granted. And to NEVER EVER GIVE UP!!!!!. I am so pleased for you and your family. Cant wait to hear how you find hoping into the water. Just take your time and you will get there!!. Mike your a true champion
Kind Regards
Vicki (friend of lous, fellow ironman mate :))
Mike,
That's a top report from the doctors mate, 'efficient form' is paying dividends and like intersets rates, your on the up.
A note ahead of your first appearance in the swimming pool - no speedos as the you don't want to distract the physio from the job at hand
I'm back to Geneva this weekend for a week - looking forward to seeing first hand the fallout at the Embassy following Tim's decision to join the Nats (get your Dad to fill you in). Will be booking in to visit you again when back in 10 days - get your Mum to call me if you want me to bring anything back for you, otherwise act surprised when I turn up with Swiss chocolate.
See you soon, Mat Bartholomew
So proud of all that you and the Wilkinson clan have achieved thus far.
Tight lines!
Arohanui
Mita and Barb Patu
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